Our Reading List (#7)

We haven’t done a reading whip ’round in awhile so here are some of the things catching our eye this week…

As always, for more from the Medical Heritage Library, please visit our full collection!

 

Guest Post: Are the best things in life free?

We are delighted to be able to offer our readers this cross-posting from The New York Academy of Medicine blog series on Innovation in Digital Publishing.

There are so many opportunities andif we’re honestchallenges for innovation in digital publishing it’s hard to pick one and stick with it, but that’s exactly what I’m going to do because some things are worth sticking with. Open access is the best facilitator of, and the biggest opportunity for, innovation in digital publishing. Publishing research open access means anyone in the world with an Internet connection can read it, instead of just the comparatively infinitesimal group of people who have access to a reasonably wealthy university library. Opportunities don’t get much bigger than that.

Much of the research the Wellcome Trust funds is in the biomedical sciences, but we also support research in the medical humanities. This is frequently published in monographs, and monographs now commonly have print runs in the low to mid hundreds. You won’t find these books in the public library or your local bookshop. You might find them in your university’s library if you’re lucky enough to have access. You will probably find them online but you might balk at the price. This lack of access is a problem!

Cover image for Fungal Disease in Britain and the United States 1850-2000

We believe the research we fund is outstanding, and think everyone should be able to access it (and build upon it). Accordingly, we recently extended our open-access policy to include monographs (and book chapters). The first monographs covered by this policy are only just being published open access, but initial usage data gives some indication of the opportunities open access affords. For example, Fungal Disease in Britain and the United States 1850-2000 by Aya Homei and Michael Worboys was published open access with Palgrave Macmillan in November 2013, and made freely available through PMC Bookshelf and OAPEN (as well as the publisher site and e-retailers like Amazon). So far, the free ePub version has been downloaded from Amazon 300 times. Another 600 PDF copies have been downloaded drom the publisher and repository sites, and nearly 3,000 individuals have accessed the HTML chapters. The true readership across digital platforms may be much greater yet, as the Creative Commons Attribution license (CC BY) means readers and other content providers and aggregators can share the work. Readers who prefer the printed page have also purchased hard and paperback copies from Palgrave.

Innovative open access publishing can provide avenues other than the traditional monograph or research article to disseminate research. Mosaic is a Wellcome Trust initiative that publishes longer narrative-based science journalism under the CC BY license. This license allows other platforms to take the content and republish itwith remarkable results. An article by Carl Zimmer on why we have blood types was republished on the BBC, io9, Pacific Standard, and The Independent, among others. Stories have been translated into Spanish, French, Polish, and Hungarian. The point is not just that more people read it, but that the content can be taken to the many different places where the people who are interested in this topic gather.

Now Available! Recommended Practices for Enabling Access to Manuscript and Archival Collections Containing Health Information about Individuals

Medical Heritage Library collaborators  the Alan Mason Chesney Medical Archives of the Johns Hopkins Medical Institutions and the Center for the History of Medicine at the Francis A. Countway Library of Medicine are pleased to announce the distribution of their jointly authored recommended practices to enable access to manuscript and archival collections containing health information about individuals. These recommendations are intended to alleviate many of the concerns repositories have related to collecting and preserving health services records, especially those repositories that are not affiliated with hospitals or medical schools.

The recommendations are presented in four categories: 1) Determining an Institution’s Status and Policy Needs; 2) Implementing Policy and Fostering Process Transparency; 3) Communicating the Nature of Restrictions; and 4) Describing Records to Best Enable Discovery and Access. Those who care for and provide access to records containing health information about individuals are invited to test the recommendations and provide feedback on their utility; those who use such records in their research are equally invited to comment on their scope.

Researchers who have used or are seeking access to primary sources containing health information about individuals are encouraged to share their experiences and difficulties accessing health services records. Visit the MHL’s researcher access survey site and contribute to our efforts to improve access to these important records.

For more information, please contact the Medical Heritage Library at MedicalHeritage@gmail.com.

This work was made possible through the generous funding of the Mellon Foundation through the Council for Library and Information Resources’ Cataloging Hidden Special Collections and Archives program (2012: Private Practices, Public Health: Privacy-Aware Processing to Maximize Access to Health Collections).

Guest Post: Digital Publishing – Communities

We are delighted to be able to offer our readers this cross-posting from The New York Academy of Medicine blog series on Innovation in Digital Publishing.

The overwhelming tendency toward openness in digital networks presents both opportunities and challenges for contemporary scholarship, and in particular for the traditional structures that have facilitated and disseminated scholarship such as membership-based scholarly societies. Some of the challenges are obvious, and have been discussed in many other fora. The increasing demand for free access to products around which revenue models have long been built, for instance, challenges organizations to reinvent their fundamental orientation toward their stakeholders. For scholars, the network’s openness presents an increasing potential for information overload and an increasing difficulty in finding the right texts, the right connections, the right conversations at the right time.

All of these challenges are of course balanced by opportunities, however, as the network also presents the possibility of greatly improved access to scholarship and more fluid channels for ongoing communication and discovery amongst scholars. These opportunities suggest that an important role for scholarly societies will be in facilitating their members’ participation in these networks, helping to create new community-based platforms and systems through which their members can best carry out their work. Insofar as scholarship has always been a conversation—if one often conducted at a most glacial pace—the chief value for scholars should come in the ability to be full participants in that conversation: not simply getting access to the work that other scholars produce, but also having the ability to get their work into circulation, in the same networks as the work that inspired it, and the work that it will inspire. For this reason, the value of joining a scholarly society in the age of the network is less in getting access to content the society produces (the convention, the journal) than in the ability to participate.

However, this opportunity points toward a deeper, underlying challenge, for societies and scholars alike: building and maintaining communities that inspire and sustain participation. This is nowhere near as easy as it may sound. And it’s not just a matter of the “if you build it, they won’t necessarily come” problem; problems can creep up even when they do come. Take Twitter, for instance, which developed a substantial and enthusiastic academic user base over a period of a few years. Recently, however, many scholars and writers who were once very active and engaged on Twitter have begun withdrawing. Perhaps the drop-off is part of an inevitable evaporative social cooling effect. Perhaps at some point, Twitter’s bigness crossed a threshold into too-big. Whatever the causes, there is an increasing discomfort among many with the feeling that conversations once being held on one’s front porch are suddenly taking place in the street and that discussions have given way to an unfortunate “reign of opinion,” an increasing sense of the personal costs involved in maintaining the level of “ambient intimacy”that Twitter requires and a growing feeling that “a life spent on Twitter is a death by a thousand emotional microtransactions.”

Gartner Hype Cycle, by Jeremy Kemp. Shared under CC BY-SA 3.0 license.

What is crucial to note is that in none of these cases is the problem predominantly one of network structure. If we have reached a “trough of disillusionment” in the Twitter hype cycle, it’s not the fault of the technology, but of the social systems and interactions that have developed around it. If we are going to take full advantage of the affordances that digital networks provide—facilitating forms of scholarly communication from those as seemingly simple as the tweet to those as complex as the journal article, the monograph, and their born-digital descendants—we must focus as much on the social challenges that these networks raise as we do on the technical or financial challenges. To say, however, that we need to focus on building community—or more accurately, building communities—is not to say that we need to develop and enforce the sort of norms of “civility” that have been used to discipline crucial forms of protest. Rather, we need to foster the kinds of communication and connection that will enable a richly conceived panoply of communities of practice, as they long have in print, to work in engaged, ongoing dissensus without reverting to silence.

Digital Connections: Trove

Trove is a discovery project from the National Library of Australia, aggregating a wide variety of content all to do with Australian history. The Library itself describes Trove as “supports the discovery and annotation of items in Australian collections.  The term “Australian collections” encompasses libraries, archives, university repositories and major online collections such as biographical databases, digitised book collections and digitised newspaper collections.” Continue reading